Today, Cara had an appointment with her neurologist. We made the appointment out of concern for her lack of speech, wanting to get another opinion to make sure we weren't missing something.
First off, I voiced my concerns about Cara's lack of progress in verbal communication and mentioned how she was capable of learning new signs.
Then, we talked about how she did verbally communicate (open vowel sounds) and what was being done in her therapy sessions. Her neurologist agreed that there didn't seem to be much progress in the 8 months that Cara has been receiving speech therapy.
Next, Cara was undressed as the neurologist looked over her body. I wasn't exactly sure what she was looking for beyond signs of hypotonia (which we know she has). Then, she pointed out some spots that Cara had on her skin.
Honestly, I never game them much attention, as I just thought that they were normal on bi-racial children. It turns out though, that they are called cafe-au-lait spots and can be an indicator of several things, one of which being neurofibromatosis, an incurable disease. Of course, it could be something else entirely, or it could be nothing but, Cara shows several signs of neurofibromatosis including developmental delays and pressure on nerves or other areas of organs (hydrocephalus).
Not wanting to be an alarmist, her neurologist has decided to take a two-fold approach to finding out what's going on--both with the spots and with Cara's delays.
1. We are to undergo genetic therapy at Children's Hospital to investigate the spots (there's a genetic malformation that is linked to neurofibromatosis) and possible causes for Cara's hydrocephalus and delays. This process is pretty intense and starts with a very complete family history and discussion with the geneticist. Usually, genetic mapping is done, as is some pretty extensive blood work. I have called and scheduled an appointment for the earliest available time. Would you believe that we have to wait until DECEMBER to be seen in the clinic?! The wait is going to be unbearable! We may try to find somewhere else to go, but I really trust the expertise of Children's, so we'll see.
2. Cara is to have another MRI to check for any increase in pressure or fluid in her brain as well as to check for any signs of malformation. She hasn't had one since July of 2007, so it's a good idea regardless. I am waiting for the order to be processed by the radiology department at Children's and then will call tomorrow to schedule the scan. This should be done in the next few weeks, so at least we'll be able to rule out anything "structurally" wrong relatively quickly.
I am trying to get a grip and stay positive, but darn it, it's not easy! The cards just keep staking up against our poor little girl. I just have to keep remembering...That which doesn't break us, makes us stronger! That said, Cara is already a strong little girl in mind, body & definitely spirit!
Rest assured, everyone, that I will be keeping you all posted as we continue the quest to answer the questions around Cara's delays.
Wednesday, August 27, 2008
Monday, August 25, 2008
Won't you please?
Dear Blog Readers,
Won't you please support our family in the Hydrocephalus Walk taking place in Highlands Ranch (suburb of Denver) on September 7th? Our entire family will be walking (well, Cara will be riding, in her stroller) the 2K event. We are really looking forward to the opportunity to help raise awareness and funds for the Hydrocephalus Association, which has been instrumental in helping me find other hydro families as well as providing information and resources during a time when we felt very alone. We would love it if you would consider reaching out and helping us in our fund raising efforts by pledging. Any amount, from $5 to $500 (I can dream) is very much appreciated and 100% tax deductible!
Please, click here to view our pledge page, read a little more about Cara's journey, and consider making a pledge. We'd really appreciate it!
With much love & thanks,
Laura, Ben & the girls.
**Everyone, if you've already received an email from me, please do not be offended. I am just trying to reach out to everyone and get as much support as possible**
Won't you please support our family in the Hydrocephalus Walk taking place in Highlands Ranch (suburb of Denver) on September 7th? Our entire family will be walking (well, Cara will be riding, in her stroller) the 2K event. We are really looking forward to the opportunity to help raise awareness and funds for the Hydrocephalus Association, which has been instrumental in helping me find other hydro families as well as providing information and resources during a time when we felt very alone. We would love it if you would consider reaching out and helping us in our fund raising efforts by pledging. Any amount, from $5 to $500 (I can dream) is very much appreciated and 100% tax deductible!
Please, click here to view our pledge page, read a little more about Cara's journey, and consider making a pledge. We'd really appreciate it!
With much love & thanks,
Laura, Ben & the girls.
**Everyone, if you've already received an email from me, please do not be offended. I am just trying to reach out to everyone and get as much support as possible**
Tuesday, August 19, 2008
It's Good Karma
There's good karma in the air around here today. No sooner had I posted about Cara's speech concerns did I receive a phone call from the neurology clinic at Children's Hospital. The neurologist who saw Cara before (one of two who saw her) has an opening NEXT Wednesday! Woo hoo! We just might get our answers sooner than we thought!
ONE YEAR!
On the heels of my rather somber post, I had to tell of a reason that we have to--CELEBRATE! Sunday marked a year since Cara's shunt surgery--a year with no malfunctions or complications resulting from having the shunt placed in her head. In fact, most days, I completely forget that she does, indeed, have a foreign object implanted in her cute little skull. Our daughter has changed so much, for the better, since August 17th of last year, we can't even begin to compare or comprehend. I just want to shout out my thanks to Cara's medical team at Children's Hospital for doing a fantastic job as well as keeping close tabs on her since her surgery. Here's to many more trouble-free years with Cara's Codman Programmable shunt! :)
Concern for Cara
As most of you know, Cara has yet to truly begin to speak. She has, at times, uttered "Momma" and imitated animals sounds (she loves the elephant) but, that is all that she has been able to master. We (Ben & I along with other family and friends and therapists) have been concerned for Cara's lack of speech.
Up until last month, she was receiving speech therapy weekly in our home. Her speech therapist is currently on maternity leave and we decided, for Cara's sake, not to have a replacement while she was gone for a month, since it would be confusing for Cara and might do more harm than good as she was so comfortable with Angela. So, I've just been working with her on the goals that were outlined before Angela's maternity leave. I am proud to report that Cara has mastered several new signs--thank you, daddy, mommy, sister and sleepy--and while we are thrilled with this progress, we were hoping for more audible progress in the way of words.
At this point in time, the only consistent sounds that she makes is an "Ahh" sound along with the "Mmmm" and sometimes "Mmmmommmma". There are times when she will make other consonant sounds but its few and far between. We were told, that speech is the last of the skills that kids learn with gross motor and fine motor falling in first and second, respectively, and that we just had to be patient. Well, Cara is walking quite well and has mastered quite a few fine motor tasks as of late. With all of this progress in other areas, you can't blame us for saying, "What about speech?!"
There is obviously, no cognitive issues that are hampering her speech. It is abundantly clear to us that Cara is smart and knows what she wants to say, but just cannot get her brain and her mouth/vocal cords to comply. This is called Apraxia according to the medical profession. Angela diagnosed Cara with this awhile ago but firmly believes that Cara will overcome this with patience and practice. While Cara shows the signs of beginning speech--turn taking, copying--that's where it stops cold in its tracks.
That being said, I have started to wonder if there's not something more going on than just a simple speech delay. I have called the neurology clinic at Children's Hospital and we are on the waiting list for an appointment, in hopes of getting in before October. I want to talk with a neurologist about possible brain damage or some such in the part of the brain (front left, I believe) that controls speech as well as the frontal lobe which controls creative expression. I am hoping that a scan will be ordered to check these areas as we haven't had any type of scan done since post-op on Cara's shunt almost a year ago. Even if the scan shows nothing out of the ordinary, I will rest assured that we have done everything that we can to find a reason for Cara's lack of speech.
It may just be that we are going to have to be even more patient that we already have been...who knows. All that I can say, in my defense, is that it is extremely frustrating at times to decode the needs of my toddler from a never-ending stream of "Ahhhh"s. Don't get me wrong, she has ways of letting us know what she wants, but oh, to hear her say, "I'm hungry!" or something like that, would be music to these ears!
So, the search for answers has just begun for us. I promise to keep you all posted as we hope to learn more in the coming months.
Up until last month, she was receiving speech therapy weekly in our home. Her speech therapist is currently on maternity leave and we decided, for Cara's sake, not to have a replacement while she was gone for a month, since it would be confusing for Cara and might do more harm than good as she was so comfortable with Angela. So, I've just been working with her on the goals that were outlined before Angela's maternity leave. I am proud to report that Cara has mastered several new signs--thank you, daddy, mommy, sister and sleepy--and while we are thrilled with this progress, we were hoping for more audible progress in the way of words.
At this point in time, the only consistent sounds that she makes is an "Ahh" sound along with the "Mmmm" and sometimes "Mmmmommmma". There are times when she will make other consonant sounds but its few and far between. We were told, that speech is the last of the skills that kids learn with gross motor and fine motor falling in first and second, respectively, and that we just had to be patient. Well, Cara is walking quite well and has mastered quite a few fine motor tasks as of late. With all of this progress in other areas, you can't blame us for saying, "What about speech?!"
There is obviously, no cognitive issues that are hampering her speech. It is abundantly clear to us that Cara is smart and knows what she wants to say, but just cannot get her brain and her mouth/vocal cords to comply. This is called Apraxia according to the medical profession. Angela diagnosed Cara with this awhile ago but firmly believes that Cara will overcome this with patience and practice. While Cara shows the signs of beginning speech--turn taking, copying--that's where it stops cold in its tracks.
That being said, I have started to wonder if there's not something more going on than just a simple speech delay. I have called the neurology clinic at Children's Hospital and we are on the waiting list for an appointment, in hopes of getting in before October. I want to talk with a neurologist about possible brain damage or some such in the part of the brain (front left, I believe) that controls speech as well as the frontal lobe which controls creative expression. I am hoping that a scan will be ordered to check these areas as we haven't had any type of scan done since post-op on Cara's shunt almost a year ago. Even if the scan shows nothing out of the ordinary, I will rest assured that we have done everything that we can to find a reason for Cara's lack of speech.
It may just be that we are going to have to be even more patient that we already have been...who knows. All that I can say, in my defense, is that it is extremely frustrating at times to decode the needs of my toddler from a never-ending stream of "Ahhhh"s. Don't get me wrong, she has ways of letting us know what she wants, but oh, to hear her say, "I'm hungry!" or something like that, would be music to these ears!
So, the search for answers has just begun for us. I promise to keep you all posted as we hope to learn more in the coming months.
Monday, August 18, 2008
Just One Word
This is the ONE WORD Meme. It's a bit harder than it looks. Thanks Judy, for some blog material.
1. Where is your cell phone? purse
2. Signifigant other? Ben
3. Worst bad habit? biting
4. Hair? Long
5. Favorite food? Carbs
6. Your favorite thing? Books
7. Your dream last night? None
8. Favorite drink? lemonade
9. Dream/goal? Masters
10. Room you are in? Living
11. Your ex? no-mustbeyours
12. Your fear? Disease
13. Where do you want to be in six years? Accomplished
14. Where were you last night? Bed
15. What you're not? Thin
16. Muffins? Struessel
17. Wish list item? Wardrobe
18. Where did you grow up? Michigan
19. Last thing you do? Pray
20. What are you wearing? Clothes
21. Your TV? OLD!
22. Your pets? None
23. Your computer? MacBook
24. Your life? Satisfactory
25. Your mood? Motivated
26. Missing someone? Grandparents (dead)
27. Your car? Outback
28. Something you are not wearing? Shoes
29. Favorite store? Target
30. Your summer? Short
31. Love someone? Duh!
32. Last time you laughed? Earlier
33. Last time you cried? Yesterday
1. Where is your cell phone? purse
2. Signifigant other? Ben
3. Worst bad habit? biting
4. Hair? Long
5. Favorite food? Carbs
6. Your favorite thing? Books
7. Your dream last night? None
8. Favorite drink? lemonade
9. Dream/goal? Masters
10. Room you are in? Living
11. Your ex? no-mustbeyours
12. Your fear? Disease
13. Where do you want to be in six years? Accomplished
14. Where were you last night? Bed
15. What you're not? Thin
16. Muffins? Struessel
17. Wish list item? Wardrobe
18. Where did you grow up? Michigan
19. Last thing you do? Pray
20. What are you wearing? Clothes
21. Your TV? OLD!
22. Your pets? None
23. Your computer? MacBook
24. Your life? Satisfactory
25. Your mood? Motivated
26. Missing someone? Grandparents (dead)
27. Your car? Outback
28. Something you are not wearing? Shoes
29. Favorite store? Target
30. Your summer? Short
31. Love someone? Duh!
32. Last time you laughed? Earlier
33. Last time you cried? Yesterday
Friday, August 08, 2008
Olympic Pride 8-8-08
I posted these questions to a group that I co-moderate, but thought it would be fun to answer them here.
It's OLYMPIC TIME!
1. Are you going to watch the Opening Ceremony of the Olympics? Why or why not? We sure are. I grew up watching both the summer and winter games and want to instill in Caitlin the same national pride that has fostered in me over the years. There's something special about seeing our country's best compete.
2, What events to you like to watch? I love gymnastics but every Olympics, I find another sport that hold my interest too. For the Winter Games, I love figure skating.
3. If you could be in an Olympic event, which would it be and why? Either cycling or figure skating. Cycling because I've always enjoyed biking. I think I would do better on a tour than an actual race though. Figure skating because it's so graceful and I love how the skaters make the music come alive. One of my favorite movies of all time in Cutting Edge--enough said?
4. What event would you like to see in the Olympics (you can even get creative and make one up)? Hopscotch or jump-roping. Back in the day, I was really good at jump rope!
5. Where should the Olympics be held next time? Why this locale? I think it's time for another Canadian Olympics, it's been awhile. I think it would be neat to have it in one of the eastern maritime provinces like Newfoundland or Prince Edward Island, but it's probably too remote.
Any of my blogging buddies care to answer these questions on their own blog? If so, let me know that you did and I'll be sure to stop by & read!
It's OLYMPIC TIME!
1. Are you going to watch the Opening Ceremony of the Olympics? Why or why not? We sure are. I grew up watching both the summer and winter games and want to instill in Caitlin the same national pride that has fostered in me over the years. There's something special about seeing our country's best compete.
2, What events to you like to watch? I love gymnastics but every Olympics, I find another sport that hold my interest too. For the Winter Games, I love figure skating.
3. If you could be in an Olympic event, which would it be and why? Either cycling or figure skating. Cycling because I've always enjoyed biking. I think I would do better on a tour than an actual race though. Figure skating because it's so graceful and I love how the skaters make the music come alive. One of my favorite movies of all time in Cutting Edge--enough said?
4. What event would you like to see in the Olympics (you can even get creative and make one up)? Hopscotch or jump-roping. Back in the day, I was really good at jump rope!
5. Where should the Olympics be held next time? Why this locale? I think it's time for another Canadian Olympics, it's been awhile. I think it would be neat to have it in one of the eastern maritime provinces like Newfoundland or Prince Edward Island, but it's probably too remote.
Any of my blogging buddies care to answer these questions on their own blog? If so, let me know that you did and I'll be sure to stop by & read!
Wednesday, August 06, 2008
School Daze
**How can she possibly be old even for school?! Wasn't I just feeding her bottles and mashed carrots?**
Caitlin started 1/2 day afternoon Kindergarten on Tuesday!
She is going to a public charter school that emphasizes multiculturalism and bilingual education. She is in the Spanish program since we figured that would be the most beneficial for living where we do. The school also offers Mandarin and French. The first 90 minutes of class are in English and the rest of the time instruction is given in Spanish. It's a very demanding curriculum (so we've heard) which is what we wanted for Caitlin, we wanted her to be challenged. Her class is also small, only 12 students which allows the teacher to provide some one-on-one attention as needed.
Anyway, Ben took the day off on Tuesday so that he could be there to send Caitlin off. She showed almost no fear when we got to her classroom and started to play with the puzzles and other interactive games on the teacher's bookcase. Caitlin made friends with one little girl during the open house and they stuck together like glue when we arrived. I think it was harder on us to leave her than it was for her. She gave each of us a hug and quickly resumed her playing.
We took some pictures at the school as well as at home after she was all decked out in her uniform and back pack. Oh my goodness, did she ever looks so grown up! When we got back to the car, knowing that she was happy & safe at school, Ben and I both had ourselves a cry. Our baby has grown up.
We were early to pick up Caitlin in the afternoon (we were told 3pm but school is released at 3:30pm) so we sat on the grass in front of the school and waited for Caitlin's class to be led out by her teacher. Caitlin was first in line and as soon as she saw Ben, she made a beeline for him--completely ignoring her teacher's instruction to stay in line. As hard as it was for him not to pick her up and give her a big hug, Ben made her get back in line until her teacher released the class. Then, she came running again! She had a big smile on her face and reported that she had a great time at school and that she listened to her teacher (except for that one time). Her class had art that day and Caitlin drew a very cute picture. She did tell us that she was starving because we didn't pack her a snack (we didn't know if they had snack time--oops!) and we promised that she could have a snack at home.
At home, I grilled her on what she had learned in school and she began signing a song in Spanish that asks someone how they are doing. I was very impressed for the first day of school! I hope that she will continue to grow and thrive in this school. She certainly seems to like it so far.
No homework yet, but we are expecting 10 minutes a night on top of reading 15 minutes per night. Since she is not in full day like we were hoping, I am also going to supplement her studies with some workbook, just to make sure that she is on par.
With school came a new routine of earlier bedtimes, early lunch and school drop off and pick up. So far, we are managing and adapting quite well, but it does seem like we're on the go a lot.
Caitlin started 1/2 day afternoon Kindergarten on Tuesday!
She is going to a public charter school that emphasizes multiculturalism and bilingual education. She is in the Spanish program since we figured that would be the most beneficial for living where we do. The school also offers Mandarin and French. The first 90 minutes of class are in English and the rest of the time instruction is given in Spanish. It's a very demanding curriculum (so we've heard) which is what we wanted for Caitlin, we wanted her to be challenged. Her class is also small, only 12 students which allows the teacher to provide some one-on-one attention as needed.
Anyway, Ben took the day off on Tuesday so that he could be there to send Caitlin off. She showed almost no fear when we got to her classroom and started to play with the puzzles and other interactive games on the teacher's bookcase. Caitlin made friends with one little girl during the open house and they stuck together like glue when we arrived. I think it was harder on us to leave her than it was for her. She gave each of us a hug and quickly resumed her playing.
We took some pictures at the school as well as at home after she was all decked out in her uniform and back pack. Oh my goodness, did she ever looks so grown up! When we got back to the car, knowing that she was happy & safe at school, Ben and I both had ourselves a cry. Our baby has grown up.
We were early to pick up Caitlin in the afternoon (we were told 3pm but school is released at 3:30pm) so we sat on the grass in front of the school and waited for Caitlin's class to be led out by her teacher. Caitlin was first in line and as soon as she saw Ben, she made a beeline for him--completely ignoring her teacher's instruction to stay in line. As hard as it was for him not to pick her up and give her a big hug, Ben made her get back in line until her teacher released the class. Then, she came running again! She had a big smile on her face and reported that she had a great time at school and that she listened to her teacher (except for that one time). Her class had art that day and Caitlin drew a very cute picture. She did tell us that she was starving because we didn't pack her a snack (we didn't know if they had snack time--oops!) and we promised that she could have a snack at home.
At home, I grilled her on what she had learned in school and she began signing a song in Spanish that asks someone how they are doing. I was very impressed for the first day of school! I hope that she will continue to grow and thrive in this school. She certainly seems to like it so far.
No homework yet, but we are expecting 10 minutes a night on top of reading 15 minutes per night. Since she is not in full day like we were hoping, I am also going to supplement her studies with some workbook, just to make sure that she is on par.
With school came a new routine of earlier bedtimes, early lunch and school drop off and pick up. So far, we are managing and adapting quite well, but it does seem like we're on the go a lot.
Saturday, August 02, 2008
Happy 5th Birthday Caitie!
Caitlin,
Mommy has really struggled with writing this post because well, she couldn't figure out how to sum up all that has happened in your world this year. But, she thinks that she's finally gathered her thoughts.
It seems, that in a blink of an eye, you have grown from a little girl to a very grown up girl indeed. You may only be 5 years old but in a lot of ways, you seem to be 15! You have wisdom and sensitivity beyond your years--your knowledge and vocabulary always amaze your family and strangers alike. We constantly find ourselves wondering how in the world you know some of things that you do or where you heard such of an "adult" word. I guess, you are just so very interactive with your world and are one big sponge.
We love how strong willed and independent you are. While, at times, we butt heads, we hope that these are traits that you never lose or let fade into the background. We want you to always speak your mind and stand up for what you believe in. The world needs more girls like you! We love how you can make your own choices and solve some of your own problems.
This past year, we have watched you literally transform before our eyes. You have lost a lot of your "baby look" and have matured into a young lady. Thank goodness, you still have your cute cheeks and contagious smile. You are definitely showing your uniqueness in the outfits that you wear, the pictures that you draw and the stories that you make up and the things that you pretend to be.
This has been a year of learning for you too. You have learned how to write your entire first and last name; how to draw very realistic pictures; play Uno, Candy Land, Shutes & Ladders and other games--by the rules; do a cartwheel and plenty more that we are forgetting. You have memorized Bible versus; played on a soccer team; learned a dance; mastered I Spy on the computer; overcome your fear of sleeping in your bed and had overnights with Grandma & Grandpa.
Best of all, you are a joy! You really are a sweet girl; a very loving and understanding big sister and a great friend. We are proud of you and hope that you know that. As you get ready to start Kindergarten, we know that you are going to love it and make so many new friends. Mommy & Daddy cannot wait to hear all about your days and help you with projects and homework.
Carry on Caitlin! It's going to be so much fun!
Happy Birthday Sweetheart!
Love always,
Mommy & Daddy
Tuesday, July 22, 2008
Totally Free Tuesday!
Excuse me while I brag a bit about my thriftiness. Because I am a SAHM, I'm always on the look-out for free things to do with the girls and such, to help stretch Ben's paychecks. Well, awhile ago, I signed the girls up for the birthday clubs at Sonic Drive In and Baskin Robbins. This was back in the spring, so I totally forgot about it. Imagine my surprise, as I'm weeding out the junk mail in my Yahoo inbox, when I find coupons from Sonic for free kid's meals for both girls and free kid's cones from Baskin Robbins. We had some errands to run anyway, so I added them to the list and off we went. The girls got their corn dog wacky pack meals while I got a strawberry limeade & chicken wrap at Sonic for the grand total of...$5! Next, it was down the street to Baskin Robbins where Caitlin enjoyed a scoop of rainbow sherbet in a cone and Cara and I split a scoop of Nutty Coconut. OMGosh, this flavor is the bomb! It totally screams summer to me! Nothing says retreat on a 96 degree day than ice cream.
We came home and then I found a post in a Deals & Steals group I belong to about BOGO coupons for Dairy Queen! Of course, we have signed up. Free food is a wonderful thing!
We came home and then I found a post in a Deals & Steals group I belong to about BOGO coupons for Dairy Queen! Of course, we have signed up. Free food is a wonderful thing!
Monday, July 21, 2008
Physical Therapy Update
Cara had her routine PT appointment today. She sees her therapist in our home once every two weeks. Lisa showed some continuing concern for how Cara's right foot turns in when she walks. We have been hoping that as she became more and more mobile, that her weight bearing on her feet would solve the problem but, that doesn't seem to be happening. So, Lisa talked with me about getting special insoles for Cara's shoes to help correct the curvature problem. Lisa will do the measurement for the inserts and fill out the order form the next time that she comes. We will then have to pay about $60 for them and they will be delivered to us in two weeks. Because the inserts are a bit thick, getting them will also require the purchase of a new pair of shoes. Cara will have to wear a supportive high heeled boot, which her therapist is going to help me pick up. It's going to be tricky to find shoes that will fit the inserts, so I'm glad to have professional help.
With these special inserts, we are hoping that the problem will correct itself within a few months. If not, we may have to move on to more invasive procedures like braces. Only time will tell.
With these special inserts, we are hoping that the problem will correct itself within a few months. If not, we may have to move on to more invasive procedures like braces. Only time will tell.
Birthday Recap
Boy am I glad that I can still get away with a low-key combined party for both girls. I know my years are limited and soon, I'll be inviting all of the kids in Caitlin's class, making goody bags and reserving the local indoor play area. I'm counting my blessings!
That said, here is what went down for the girls' birthday celebration last Wednesday.
My parents made the trek over from the western slope to be in town to help us celebrate. We started off the festivities by taking Caitlin shopping for some much needed school supplies. She had fun watching the cart fill up with markers, glue sticks, construction paper and the like. She's so excited for school to start.
As a special treat, Caitlin got to sleep over with my parents at their hotel complete with a swim in the hot tub and continential breakfast in the morning.
Cara & I met up with everyone and we prepared to head to the zoo for the day. One of the girls' gifts from my parents was a family pass to the Denver Zoo. Despite the sorching temperatures, we had a lot of fun looking at the animals and riding the train and carousel. I cannot wait to make many return trips as there were a lot of exhibits that we didn't get to see that day.
After the zoo, we met Ben at Chuck E Cheese for some fun & games. Caitlin and Ben had a blast playing the games together and racked up quite a few (almost 300 tickets). Even my parents got into the fun and played a few games. Cara loved the toddler rides, especially the mini carousel. We ate pizza, sipped on soda and had fun pressing our luck at the wide variety of games. I have to say, that the Aurora Chuck E Cheese was one of the better ones I'd been to in a long time. A lot of new, interactive games and all of them were in working order.
We wrapped up the festivities at Chuck E Cheese and headed home to our place for presents, cake and ice cream. The girls had fun unwrapping their gifts and were thrilled with all of them. Caitlin's favorites being her new bike and the Let's Go Fishing Game. Cara loves her Fisher-Price Gumball Machine and her Duplos.
The party was a hit! I just loved watching their eyes light up with excitement throughout the day. That's what it's all about! You can look at pictures from the day-long adventure here. Feel free to leave comments.
I cannot believe that another year has come to pass. My girls are growing up entirely too fast. It is fun, yet sobering at the same time. Makes me savor each and every moment and memory.
That said, here is what went down for the girls' birthday celebration last Wednesday.
My parents made the trek over from the western slope to be in town to help us celebrate. We started off the festivities by taking Caitlin shopping for some much needed school supplies. She had fun watching the cart fill up with markers, glue sticks, construction paper and the like. She's so excited for school to start.
As a special treat, Caitlin got to sleep over with my parents at their hotel complete with a swim in the hot tub and continential breakfast in the morning.
Cara & I met up with everyone and we prepared to head to the zoo for the day. One of the girls' gifts from my parents was a family pass to the Denver Zoo. Despite the sorching temperatures, we had a lot of fun looking at the animals and riding the train and carousel. I cannot wait to make many return trips as there were a lot of exhibits that we didn't get to see that day.
After the zoo, we met Ben at Chuck E Cheese for some fun & games. Caitlin and Ben had a blast playing the games together and racked up quite a few (almost 300 tickets). Even my parents got into the fun and played a few games. Cara loved the toddler rides, especially the mini carousel. We ate pizza, sipped on soda and had fun pressing our luck at the wide variety of games. I have to say, that the Aurora Chuck E Cheese was one of the better ones I'd been to in a long time. A lot of new, interactive games and all of them were in working order.
We wrapped up the festivities at Chuck E Cheese and headed home to our place for presents, cake and ice cream. The girls had fun unwrapping their gifts and were thrilled with all of them. Caitlin's favorites being her new bike and the Let's Go Fishing Game. Cara loves her Fisher-Price Gumball Machine and her Duplos.
The party was a hit! I just loved watching their eyes light up with excitement throughout the day. That's what it's all about! You can look at pictures from the day-long adventure here. Feel free to leave comments.
I cannot believe that another year has come to pass. My girls are growing up entirely too fast. It is fun, yet sobering at the same time. Makes me savor each and every moment and memory.
Sunday, July 20, 2008
Almost 15 seconds of fame, balloons and cake
Wednesday morning, Cara had two near back-to-back appointments at Children's Hospital. One for the eye clinic (got an Rx for some drops that work like a patch to strengthen her right eye) and one for OT. We had a bit of time to waste in-between appointments, we ventured up the the therapy floor in search of Cara's old PT therapist to show her that Cara was walking. Since it was Karen's hard work (once a week for months) that led to this accomplishment, I promised Karen that we would bring Cara by to show her when it happened. Karen ran to Cara and Cara gave her a big hug. It was such of a cute moment. Afterwards, we went to the cafeteria to snag a quick breakfast. After eating, we noticed a gathering of people in the atrium so we decided to check it out, see what all of the fuss was about. Turns out, a Native American dance demo was taking place. Cara & I sat and watched several dancers perform (I wish I had my camera because they had the most beautifully beaded and feathered costumes!) and then participated in a circle dance at the end. A photojournalist from the Denver Post approached me and took Cara's picture, saying that we might be in the next day's paper, but alas, we weren't...limited coverage space. We had a blast though and it just helped to make Cara's day. Afterward, we headed up to her OT appointment where we worked on feeding techniques--basically getting Cara to learn to take smaller bites.
After the hospital, Cara & I went to pick up Caitlin's cake & the balloons that I ordered. Did I mention that Cara is cuckoo for balloons these days? Every time she sees one, she loudly announces it to everyone. So to say she was excited to see the bunch of balloons was an understatement. The look of excitement on her face was almost worth the cost of the balloons. We picked up Caitlin's cake from Target and this is the part that made my day--the cake was marked down from $21 to $8 because they had run out of butter cream frosting, which I had requested and had to use a whip frosting instead. It was very nice of them, but unnecessary because I could pretty much just buy a tub of frosting, stick a candle in it and present it to Caitlin in lieu of cake and she would be on cloud nine. Still, I love saving money, so I was a happy camper. You can see the girls' cakes here. I think both turned out real cute. Caitlin picked out her cake, and surprised me by not choosing something pink or with princesses or Barbies. I chose Sesame Street for Cara's cake because she loves to watch the show with me in the mornings and seems to have a love of Elmo. I found the Sesame Street gang image online and then King Soopers (Target doesn't have this ability) made it into an edible image.
Next year, I'm going the easy route and doing cupcakes or if we must have cake, I'm ordering an 1/8 of a sheet cake for both girls. Cake leftovers get old after a while!
I will a birthday celebration recap post in a little while.
After the hospital, Cara & I went to pick up Caitlin's cake & the balloons that I ordered. Did I mention that Cara is cuckoo for balloons these days? Every time she sees one, she loudly announces it to everyone. So to say she was excited to see the bunch of balloons was an understatement. The look of excitement on her face was almost worth the cost of the balloons. We picked up Caitlin's cake from Target and this is the part that made my day--the cake was marked down from $21 to $8 because they had run out of butter cream frosting, which I had requested and had to use a whip frosting instead. It was very nice of them, but unnecessary because I could pretty much just buy a tub of frosting, stick a candle in it and present it to Caitlin in lieu of cake and she would be on cloud nine. Still, I love saving money, so I was a happy camper. You can see the girls' cakes here. I think both turned out real cute. Caitlin picked out her cake, and surprised me by not choosing something pink or with princesses or Barbies. I chose Sesame Street for Cara's cake because she loves to watch the show with me in the mornings and seems to have a love of Elmo. I found the Sesame Street gang image online and then King Soopers (Target doesn't have this ability) made it into an edible image.
Next year, I'm going the easy route and doing cupcakes or if we must have cake, I'm ordering an 1/8 of a sheet cake for both girls. Cake leftovers get old after a while!
I will a birthday celebration recap post in a little while.
Thursday, July 17, 2008
Happy 2nd Birthday Cara!
Cara,
Today, you cross over the threshold between babyhood and all that is yet to come. In the past year, you have come so far. Thanks to wonderful doctors, a skilled neurosurgeon and attentive therapists, you are forging ahead, learning something new every day. In one short year, you have learned how to crawl, cruise the furniture, do the elephant walk, do baby signs and now, walking. You have blossomed from being an immobile baby to such of a colorful little girl. We just love your personality, even when you want to be stubborn and fiercely independent. You love to give hugs and kisses, watch Sesame Street on Mommy's lap and play pretend with your sister. You are a very good sleeper, love to go for car rides and have an obsession with balloons. Milk is a must-have before bed, as is your red chicken from Uncle Matt. You have just learned to say "Momma" and we love the sound of your voice. We cannot wait for you to join in conversations and state your opinion or protests. This has been an amazing year, baby girl, and we know that there are many good times to come. We feel so blessed to have you in our lives, you are a ray of sunshine.
The world awaits you little girl, go & explore. Mommy & Daddy will be right by side to share in your adventures!
We love you LuLu! Happy 2nd Birthday!
Love,
Mommy & Daddy
Birthday Flickr Photos
Just a shout-out to my readers to let you know that there are new photos on my Flickr page from the birthday outing to the Denver Zoo and Chuck E Cheese. The batteries in my camera died when it came time to open presents, so my dad stepped in. I will be downloading the photos from his camera in a little bit, so check back. I will also have some birthday posts up later today/tonight.
Friday, July 11, 2008
Kindergarten Baby
I'm going to be the mother of a Kindergartner in less than a month!! Where, oh where, did the time go?
Caitlin starts full-day (we have to pay a small monthly amount for this privilege) Kindergarten in less than a month, August 5th to be exact. She will be attending Global Village Academy, a public charter school. We chose not to send her to the public school because it is in a bad neighborhood (even Ben got the heebie jeebies) and overcrowded. At Global Village, she will benefit from a bilingual (Spanish) program and smaller classrooms. This school is pretty new (2nd year) so we are hoping that everything goes smoothly.
We have been busy trying to get everything that Caitlin will need for school. Gone are the days of sending your child dressed in Sunday best with a pencil, slate and an apple for the teacher. We have a double-sided list for the classroom and an additional long and very specific list for art class. All I have to say is, my kid better be making some gallery quality artwork with those expensive brushes, oils and pastels! Caitlin also has to have uniforms to attend. Thankfully, they have patches so that we can sew them on to shirts, pants, jumpers, skorts and other items that we purchase (within the schools approved colors and styles, of course) rather than having to buy all of their special-made clothing. I mean, wouldn't you rather risk pricking your finger with a needle to sew a $3 patch onto a $8 shirt than buy a $18 shirt? Frugal-ness is the name of the game around here. Grandma is looking forward to helping Caitlin with her school supply shopping and hopefully, helping Caitlin's mom with the patch sewing!
One of the requirements for attending Global Village is that every family must volunteer 30 hours a year to help the school. I have found a couple of opportunities already and the rest, I'll have to juggle with a terrible two year old in tow. This could be interesting, to say the least.
We will see how this year goes. I'm hoping that Caitlin loves it and will want to go back for 1st grade. If not, we do have another option. Originally, we wanted Caitlin to go here and thought we were in but, do some some miscommunication, we lost our spot and were relegated to the lottery. Needless to say, our name has not been chosen. So, Global Village was our second choice, but a strong second. I had the opportunity to talk with another GVA parent at WalMart a few days ago and she said that both she & her daughter loved the school, despite it being brand new, and were returning this year. So, this gives me hope.
As we prepare to send our baby off to school, I have mixed feelings. I know that Caitlin is ready for school and that she will do wonderfully, but I am going to miss having her bubbly persona around during the day. I want her to learn, grow and make new friends but, I also don't want her to grow up too much. I'm sure I'll be one of those moms who shed tears privately in the car, after their child is safely out of sight then shouts hallelujah!
Caitlin starts full-day (we have to pay a small monthly amount for this privilege) Kindergarten in less than a month, August 5th to be exact. She will be attending Global Village Academy, a public charter school. We chose not to send her to the public school because it is in a bad neighborhood (even Ben got the heebie jeebies) and overcrowded. At Global Village, she will benefit from a bilingual (Spanish) program and smaller classrooms. This school is pretty new (2nd year) so we are hoping that everything goes smoothly.
We have been busy trying to get everything that Caitlin will need for school. Gone are the days of sending your child dressed in Sunday best with a pencil, slate and an apple for the teacher. We have a double-sided list for the classroom and an additional long and very specific list for art class. All I have to say is, my kid better be making some gallery quality artwork with those expensive brushes, oils and pastels! Caitlin also has to have uniforms to attend. Thankfully, they have patches so that we can sew them on to shirts, pants, jumpers, skorts and other items that we purchase (within the schools approved colors and styles, of course) rather than having to buy all of their special-made clothing. I mean, wouldn't you rather risk pricking your finger with a needle to sew a $3 patch onto a $8 shirt than buy a $18 shirt? Frugal-ness is the name of the game around here. Grandma is looking forward to helping Caitlin with her school supply shopping and hopefully, helping Caitlin's mom with the patch sewing!
One of the requirements for attending Global Village is that every family must volunteer 30 hours a year to help the school. I have found a couple of opportunities already and the rest, I'll have to juggle with a terrible two year old in tow. This could be interesting, to say the least.
We will see how this year goes. I'm hoping that Caitlin loves it and will want to go back for 1st grade. If not, we do have another option. Originally, we wanted Caitlin to go here and thought we were in but, do some some miscommunication, we lost our spot and were relegated to the lottery. Needless to say, our name has not been chosen. So, Global Village was our second choice, but a strong second. I had the opportunity to talk with another GVA parent at WalMart a few days ago and she said that both she & her daughter loved the school, despite it being brand new, and were returning this year. So, this gives me hope.
As we prepare to send our baby off to school, I have mixed feelings. I know that Caitlin is ready for school and that she will do wonderfully, but I am going to miss having her bubbly persona around during the day. I want her to learn, grow and make new friends but, I also don't want her to grow up too much. I'm sure I'll be one of those moms who shed tears privately in the car, after their child is safely out of sight then shouts hallelujah!
Total Craziness
I know it's complete chaos when I need lists to keep everything straight in my mind. Here is what is going down at the McLean-Ogoe household.
**We just finished up Bible Sports Camp and the required shuttling back and forth
**We are gearing up for both girls' birthday next week which means cake purchasing, present selection (and subsequent wrapping), crepe paper hanging, balloon arranging...you get the idea. I -think- I have everything under control. Let's just hope that I don't forget to pick up aforementioned cakes or balloons. Tomorrow is present selection and my PTO (Personal Time Out) so, I'm looking forward to it.
**My parents are coming into town on Tuesday to help us celebrate the girls' birthdays so, the house needs to be clean enough to pass the white glove inspection. I doubt they care if my kitchen floor could be eaten off of, but the sad thing is, I do. I love to stress myself out.
**As if my week weren't busy enough, throw in a visit for Cara with the ophthalmologist and occupational therapist, all in a span of 90 minutes.
**Oh, and did I mention that we are throwing in a trip to the Denver Zoo and the local Chuck E Cheese after the appointments? What can I say, I'm glutton for punishment. I just hope that Mother Nature cooperates and that it's not 100 degrees in shade nor pouring rain.
**Caitlin starts school on August 5th. That is another post in and of itself. Since I'm on a blog-post roll here, I'll do that one next.
Here's hoping that things will settle down somewhere around Christmastime!
(Note to my husband, if you read this, thank you so much for the iPod, I'd be lost without it lately. Well, at least more lost than I already am. It helps control the chaos.)
**We just finished up Bible Sports Camp and the required shuttling back and forth
**We are gearing up for both girls' birthday next week which means cake purchasing, present selection (and subsequent wrapping), crepe paper hanging, balloon arranging...you get the idea. I -think- I have everything under control. Let's just hope that I don't forget to pick up aforementioned cakes or balloons. Tomorrow is present selection and my PTO (Personal Time Out) so, I'm looking forward to it.
**My parents are coming into town on Tuesday to help us celebrate the girls' birthdays so, the house needs to be clean enough to pass the white glove inspection. I doubt they care if my kitchen floor could be eaten off of, but the sad thing is, I do. I love to stress myself out.
**As if my week weren't busy enough, throw in a visit for Cara with the ophthalmologist and occupational therapist, all in a span of 90 minutes.
**Oh, and did I mention that we are throwing in a trip to the Denver Zoo and the local Chuck E Cheese after the appointments? What can I say, I'm glutton for punishment. I just hope that Mother Nature cooperates and that it's not 100 degrees in shade nor pouring rain.
**Caitlin starts school on August 5th. That is another post in and of itself. Since I'm on a blog-post roll here, I'll do that one next.
Here's hoping that things will settle down somewhere around Christmastime!
(Note to my husband, if you read this, thank you so much for the iPod, I'd be lost without it lately. Well, at least more lost than I already am. It helps control the chaos.)
It Works!
I may be behind the ball, but better late than never as the saying goes.
We finally instituted a Goal Chart here at our house. I have thought about doing one for Caitlin for some time, but I didn't want to be a "mean mom". Well, I finally decided that I wanted Caitlin to have good manners and some responsibilities so, I broke out the chart. I found it at the Dollar Tree for the bargain price of, you guessed it, $1.
I had no trouble thinking up the "goals" that Caitlin would have to meet--
*Listening (read: no arguing, whining or having to be told to do something more than once.
*Being kind (mostly to Cara as she can, at times, be a bit rough and mean)
*Brushing her teeth every day
*Picking up her toys when done playing
*Cleaning up after meals (taking her plate to the sink, wiping up any crumbs)
*Going to bed on time (a biggie because of the newly implemented earlier bedtimes)
*Making her bed in the morning
We decided that if she did 5 out of 7 goals all week, she would get a special prize (something under a dollar, that I would pick out).
I cannot believe that it's actually working. I am not the biggest advocate of bribing children in order to get them to behave but, well, I'm desperate. Plus, I don't even really have to remind Caitlin to do her chores...she just does them! I barely even have to warn her when her behavior is heading south before she realizes her error. She wants those goofy little stamps on her chart. She is craving the chocolate bar (which she thinks is the perfect reward)!
Excuse me, I need to wipe this shocked look off of my face.
We finally instituted a Goal Chart here at our house. I have thought about doing one for Caitlin for some time, but I didn't want to be a "mean mom". Well, I finally decided that I wanted Caitlin to have good manners and some responsibilities so, I broke out the chart. I found it at the Dollar Tree for the bargain price of, you guessed it, $1.
I had no trouble thinking up the "goals" that Caitlin would have to meet--
*Listening (read: no arguing, whining or having to be told to do something more than once.
*Being kind (mostly to Cara as she can, at times, be a bit rough and mean)
*Brushing her teeth every day
*Picking up her toys when done playing
*Cleaning up after meals (taking her plate to the sink, wiping up any crumbs)
*Going to bed on time (a biggie because of the newly implemented earlier bedtimes)
*Making her bed in the morning
We decided that if she did 5 out of 7 goals all week, she would get a special prize (something under a dollar, that I would pick out).
I cannot believe that it's actually working. I am not the biggest advocate of bribing children in order to get them to behave but, well, I'm desperate. Plus, I don't even really have to remind Caitlin to do her chores...she just does them! I barely even have to warn her when her behavior is heading south before she realizes her error. She wants those goofy little stamps on her chart. She is craving the chocolate bar (which she thinks is the perfect reward)!
Excuse me, I need to wipe this shocked look off of my face.
Bible Sports Camp
We just wrapped up a week of Bible Sports Camp for Caitlin. Our church (a total of three campuses) puts on quite the VBS program with actual VBS, sports camps and fine art camps. We chose sports camp because we really wanted Caitlin to get some physical activity in this summer. She had a total of 8 activities to chose from, one in the morning and one in afternoon. She chose to do dance in the mornings and soccer in the afternoons.
We had to institute earlier bedtimes, both girls are night owls, in order for Caitlin to get enough sleep and be pleasant when I woke her up at 8 o'clock so that we could be out the door at 8:30am. Sports camp was from 9am-2pm, so it gave me some precious one-on-one time with Cara, which we savored.
Caitlin had a total blast! She came home every day and showed me the dance moves that she had learned from "her summer school teacher" and is pretty quick on her feet with a soccer ball. Mixed in there amongst jazz moves and scrimmage were simple Bible lessons and stories. A very wholesome program.
Caitlin came away with some new skills, both in sports and socially. She has learned a little of what it is going to be like being in a class or activity with other children--turn taking, raising her hand, being polite, following directions and things of that nature. We have tried to teach her those things at home, but this was a much more appropriate and productive setting for her. Sports camp has also given her a sample of what it's going to be like being at school all day. We really wanted to figure out a way to introduce her to this concept, thankfully, Circle J Summer Camp came to the rescue! I hope that we can continue to participate for years to come.
I almost forgot the best part, at least in my opinion. We found the sweetest college student to babysit the girls when Ben & I want a date night. She was one of Caitlin's "teachers" and they both took a liking to each other from the start. We plan to put Aubrey "to work" very soon.
We had to institute earlier bedtimes, both girls are night owls, in order for Caitlin to get enough sleep and be pleasant when I woke her up at 8 o'clock so that we could be out the door at 8:30am. Sports camp was from 9am-2pm, so it gave me some precious one-on-one time with Cara, which we savored.
Caitlin had a total blast! She came home every day and showed me the dance moves that she had learned from "her summer school teacher" and is pretty quick on her feet with a soccer ball. Mixed in there amongst jazz moves and scrimmage were simple Bible lessons and stories. A very wholesome program.
Caitlin came away with some new skills, both in sports and socially. She has learned a little of what it is going to be like being in a class or activity with other children--turn taking, raising her hand, being polite, following directions and things of that nature. We have tried to teach her those things at home, but this was a much more appropriate and productive setting for her. Sports camp has also given her a sample of what it's going to be like being at school all day. We really wanted to figure out a way to introduce her to this concept, thankfully, Circle J Summer Camp came to the rescue! I hope that we can continue to participate for years to come.
I almost forgot the best part, at least in my opinion. We found the sweetest college student to babysit the girls when Ben & I want a date night. She was one of Caitlin's "teachers" and they both took a liking to each other from the start. We plan to put Aubrey "to work" very soon.
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